Rilley Rocked the Neurological Exam!

The Small Animal Clinic at the University of Guelph

Well, it's that time of year again!  Rilley had his annual neurological check up today with his neurologist Dr. Fiona James at the University of Guelph's Small Animal Clinic.

Recently there have been a couple things that had us concerned, so today's follow up appointment came about at the right time.  Two weeks ago, we had taken Rilley for a walk, one that was a little bit longer than usual.  When we returned home his hind legs were shaking.  Then the next evening Rilley experienced a breakthrough seizure.  It was his third in almost as many years and presented itself in the exact same manner; rapid, uncontrolled jaw movement that lasts for about 10 to 15 seconds.  It could also be described as teeth chatter, although his teeth never contact each other.

Rilley waiting to be called in to see the neurologist.

When we arrived, Dr. James was just finishing up a procedure with another patient, so we met with one of her residents who had briefed herself on Rilley's history beforehand and knew the major points of his case.  She took him off to meet up with Dr. James so they could perform the physical and neurological exams.

We are pleased to report that Rilley passed the physical and neurological exams with flying colours and he had even lost some weight!

To follow up on our concerns, Dr. James' advice was, as we had been told by Dr. Pluhar in Minnesota, that seizures are not an uncommon occurrence in dogs who have had tumours removed and since his have been so minor and infrequent, we should not be overly concerned.  As for his back, beagles are apparently prone to some disc compression in their lower backs as they age and that may contribute to the shaking.  Additionally, the shaking appears to be positional; meaning that it only occurs when he sits or stands in a certain way...if we notice him shaking, a slight move is all it takes to make it stop, which a lot of times Rilley will do on his own anyway.

So all in all, the recent concerns were not an indication of any decline in his health and Dr. James was pleased to see that Rilley is continuing to thrive.

Way to go Rilley, you really did rock the neuro-exam!

(You'd think that with all the time he's spent at universities that he'd be close to getting his own Ph.D.)

Happy 1K Day Rilley!

Wow, 1000 days and still going strong!

Today marks yet another significant milestone in Rilley's life.  It has now been exactly 1000 days since his surgery to remove a lethal brain tumour.  That is certainly much longer than the six weeks he had been given at the time of diagnosis.

We couldn't let this momentous occasion pass without giving it the recognition it deserves; this truly is a landmark day.  If a simple beagle from small town Ontario has won the fight against cancer thanks to the work being done at the University of Minnesota, the future looks very bright for the human beneficiaries of the research he took part in.

A screen capture of the "surgery" counter from earlier today.

We can honestly say that, aside from thrice daily medication, life has returned to normal...almost as if the tumour never existed.

Happy 1000th day Rilley!

The Inside Story: The Life of Rilley

Now that Rilley is on his way to three years since he underwent treatment for the meningioma, there is a renewed interest in his story.  In June the Toronto Star published an article about him in their spread on veterinary medicine.  I know many people saw that story, but it also drew the attention of Avery Haines from CityNews. She contacted us and asked if we would share our story for her series "Inside Story".  This story has always been so much bigger than Rilley himself, so any time we can draw attention to the advanced research being done at the University of Minnesota, we are always up for it.

Avery's story aired tonight (three times in total) and Sara and I are very happy with the way it turned out.  It was a great balance of the seriousness of the subject matter along with the lighter side of life with Rilley...fridge lock, anyone?  The whole family took part.  The girls were in it and we even managed to get Sara on camera as well.   I know it's hard to tell a complex story like Rilley's in the timespan of a news story, but Avery and her team did it very well.

After it aired, Sara noticed that the @CityAvery Twitter feed had some chatter on it about the story.  All the feedback seemed to be positive.

Have a look for yourself, just follow this link:

http://www.citynews.ca/2013/07/18/the-inside-story-rilley-the-dogs-cancer-treatment-may-help-humans/

Rilley the Water Dog

In all of his 12 years, there's one thing that Rilley has never done.  Unlike most dogs, he has never before gone swimming.  Well, this past Saturday that all changed.  With the current stretch of hot weather we thought the timing could not have been better.  So we took him down into the ravine near our house where a creek runs through.

Nice cool water on a hot day.

We found a great spot where we could just walk in with him, but with deeper areas so that he could try to swim.  He seemed to welcome the cool water running across his paws, but was a bit tentative with the deeper water.  So, to help out, I picked him up and lowered him into an area where he could swim without touching bottom.  When I let go, he kept his head above water and swam back to shallower water.

"I can do it!  I can swim!"

Given that this was his very first time in the water, he didn't seem to stress about it at all.  He swam as if it was the most natural thing for him to do.  However, while he really seemed to like it, a few times in and out and he had enough and trotted off to shore.

If the dog days of summer continue to be hot, Rilley now has a choice to chill in the air conditioned climate of the house, or to go for a short walk and cool off in the the creek!

Rilley...a real "Toronto Star"!

Photo: Chris So, The Toronto Star

Back in January, the Toronto Star ran an article detailing the Slaight family's generous donation of $50 million to the Princess Margaret Cancer Centre.  In it Dr. Benjamin Neel, the centre's director of research had said:

"Targeted treatment and immune therapy — a way to reactivate the immune system against tumours — could lead to cures"

Immune therapy is exactly how Rilley was treated for his brain tumour, and it ultimately saved his life.  So I reached out to writer Isabel Teotonio through an email saying that immune therapy can indeed work; after all we have proof in a four-legged, furry friend.  Ever since we participated in the trial at the University of Minnesota, where Rilley benefited from the hard work and dedication of the late Dr. John Ohlfest, Dr. Liz Pluhar and the rest of their team, we've wanted to bring them as much exposure as possible.  It's just our little way of trying to give back for all that we have received from them...our family could never thank them enough.

A few weeks ago, Isabel paid us a visit to interview Sara and I for the article and photographer Chris So came to get some photos.  We sat down and discussed Rilley's entire journey...interestingly it reminded us of just how far he's come.

Rilley seems to have taken a real liking to Toronto Star photographer Chris So.

This weekend the June 1st edition of the Saturday Star is running a series of articles about veterinary medicine including one chronicling Rilley's unique story.  Isabel did a fantastic job writing it, so look for the article entitled "Veterinarian: Rilley the Miracle Dog" in the Life section of the paper or click on the image below to be taken to the online edition.

The Emperor's New Collar (Rilley's 12th Birthday)

Happy 12th Birthday Rilley!

Rilley and all his Birthday spoils!
"Keep your paws off!  They're mine!", he says.

Today marks Rilley's 12th Birthday; another monumental occasion given the incredible second chance he has been given. Well, as I've said before it's really the anniversary date of the day we brought him home from the doggie adoption agency.  That was 10 years ago when he was just two years old.  As usual, we took him out to one of the many pet stores and let him pick out something special, and as tradition dictates around our house, it would be a new collar.  He has received new collars for such things as birthdays, Christmas, trips that we've been on including one from the 2010 Vancouver Olympic Winter Games and most befitting, one from the University of Minnesota.

A selection of collar's past, including from the University of Minnesota and the
2010 Olympic Winter Games.

The store we chose this time was Petsmart on Argentia Road in Mississauga.  While we were shopping, the staff checked if there was anything we needed help in finding.  Sara had wanted to find him a collar that said something like "Happy Birthday" on it...while I knew the chances of finding that were slim to none...Sara insisted that we ask, after all we did get him a Christmas collar!  Of course, there were no birthday-specific collars to be found, but this tipped off the staff to his special day.  A little later, while I was still shopping, the staff member who we had spoken with came up with two toys and asked Rilley to pick one.  When he seemed to settle on the one in the picture above, she removed the tags, said "Happy Birthday" and gave it to him.  That was very nice and when I thanked her, she said it wasn't everyday that a pet comes in on their actual birthday!

Unfortunately, I was not paying enough attention to get the lady's name, I really would have liked to thank her properly here on the blog, or even have mentioned to their corporate office that they have some wonderful employees.

When we checked out, the cashier saw the toy and asked "Is this the Birthday Boy?"  It sure was.  He really is a very lucky dog.  Oh, and yes, he did get a new collar!

Happy Birthday Rilley!

Cancer research has lost a true pioneer

Dr. John Robert Ohlfest
1977 - 2013

It is with great sadness that Sara and I pass along the news that Dr. John Ohlfest, the driving force behind the experimental treatment that saved Rilley's life, passed away on January 21st of melanoma; he was 35. It is through John's unwavering dedication and ground breaking research that advances in the treatment of brain tumours have been possible.

Having had the opportunity to communicate with John on several occasions and even to sit and have a discussion over lunch it became apparent that John was not only a brilliant mind, but a genuinely kind and down to earth person.  Despite his busy schedule, he took the time give us a tour of his lab and even to answer our daughters questions.  One of the best impressions we walked away with that day was his love for his family.  When he showed us his office, he just beamed with pride when he spoke of his family.

Needless to say, we were shocked to learn of his passing.  It is incredibly ironic that a man who dedicated his life to finding a cure for brain cancer lost his own battle with another form of this devastating disease.  We can only hope that his life's work continues on as the treatments he developed have already begun to help people and we would really like to see it prove to be a cure.  That would truly be a fitting tribute.

For more insight into the incredible life of Dr. Ohlfest, the Masonic Cancer Center at the University of Minnesota issued the following press release which also contains a link to his obituary:

http://www.cancer.umn.edu/news/releases/2013/Ohlfest.html

Our thoughts are with his family.